White Matter Disorders Clinic

The White Matter Disorders Clinic is based at the Royal Children’s Hospital in Melbourne, Australia and runs on a monthly basis. The clinic provides comprehensive assessment and diagnostic testing where needed for children with leukodystrophies and white matter disorders.

The clinic comprises of paediatric neurologist Professor Richard Leventer and clinical geneticist Dr. Chloe Stutterd, who both have expertise in caring for individuals with leukodystrophies and are actively involved in ongoing research to find new treatments.

What to expect at your visit

Appointments are usually held on the fourth Tuesday of each month. A typical visit takes about an hour. Depending on your child’s specific needs, it may take longer if additional testing is needed or you have volunteered to participate in research.

At the appointment, the doctors will take a detailed family and clinical history and will examine your child. You will be shown pictures from your child’s brain MRI if available and these changes will be explained to you. We will try and explain why your child may have a change in brain development and what sort of problems to expect in the future as a result of the brain changes.

The doctors will also discuss any future investigations that may need to be done, and you will have the opportunity to ask questions or ask for further information. We may invite you to be part of research studies aimed at understanding the causes and outcome of your child’s condition in more detail.

If you are interested in an appointment, please organise a referral from your GP or specialist.

A note for providers: to refer please see our Healthcare Providers page for more details.

Dr. Chloe Stutterd and Professor Rick Leventer at the Challenging Childhood Dementia Symposium in March 2022.